Wednesday, October 7, 2009

DIY OT.. Acronym Heaven








Bob, like most kids on the spectrum, has many sensory issues. While they're not life threatening or dangerous, they do impact significantly on his quality of life.
For example, it can be viewed as kinda comical when a small boy strips off and proudly displays his crown jewels to the passing traffic....but fast forward ten years and the comedy will likely be unappreciated by the local constabulary, and the public in general.
Not being able to tolerate walking barefoot on sand or grass is no big deal now, as Bob can still (just about) be hoisted onto Daddy's shoulders and carried across it. In a few short years we'll need wheelbarrow or a forklift to transport him. Either that or I start taking anabolic steroids now and seriously hit the gym.

He gets a ST/OT (Speech Therapy/Occupational Therapy) sessions about once a month, which is great, but hey, he needs it every day, and short of winning the lottery (or kidnapping an unsuspecting OT and keeping them prisoner - tempting, but illegal)...Bob's needs will have to be met by Yours Truly.

Now, I'm not an OT. Sadly, no-one mentioned to me 20 years ago that one day I would have a gorgeous, loopy son who would need lots of OT, lots of the time. I would have worked a bit harder at school, got an OT qualification, and while I was at it, studied ST, psychology and physiotherapy as well.
What an oversight!

Over the last few years I've read, watched , listened, googled and learned and now have a reasonable grasp of the kind of input Bob needs (mostly jumping, swinging and deep massage). I briefly became enamoured with the notion of having a Sensory Room until I got horribly frightened by the technical equipment with the scary price tags...in retrospect I thought that I would feel less incompetent and more able to Make Him Better  if I had space-age gadgets in a dedicated room.

Then I wised up.

I have 3 kids, one husband and two dogs (I hope Bob's Dad won't be offended at being listed after the children, but at least he outranks the mutts).
It's unrealistic to make an entire room out of bounds to all but Sir Bob, and silly to fling money at overpriced toys when we have a mortgage to pay and food to buy. On closer inspection, I found that many of the OT sensory toys that cost upwards of thousands of euros, can be found at a fraction of the price at supermarkets, DIY stores and certain Scandinavian stores...they're just called humble bean bags and fleeces and lava lamps.
 It has been a small epiphany to me that we can do DIY OT, and we don't need to build an extension to do it.

And now lets go on to Any Other Business.
My dear friend Lucy has had a miracle all of her own when her 10 year old son Luke started talking after 8 1/2 years of silence. To say that Luke has inspired hope and joy in all autie parents is an understatement. There have been many emotional tears and cheers of delight for this remarkable young man. Well done Luke, your mammy's years of patient love and dedication is clear to us all

7 comments:

  1. Fab post again missus! I too dabbled with the thought of a sensory room but the serious price tag of the equipment put me off! Like you, we do it DIY Style, have a 14ft trampoline which Munchkin adores (would love to join her up there but I'm afraid not doing certain exercises during pregnancy make that a bit risky lol). We have beanbags, lava lamps, Xmas lights and lots of textured objects, sandpits, watertrays, mirrors etc. If its raining, the double bed in the spare room gets put to good use and the duvet doubles as a sensory tool to be swung in, wrapped in etc.... It doesn't have to be expensive, you just have to look around :)

    When I read your section on Luke, once again I got a lump in my throat and welled up at this incredible young man. I'm so proud and happy for Lucy and her family!

    xxx

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  2. Sounds great Jean. Brilliant post.

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  3. Bob looking his usual cute self. What kind of a lunatic is blogging before 6 in the morning??

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  4. ya must be joking alison...i don't do 6am...someone in cyberspace forgot to set their clock.
    thanks for your comments ladies xxx

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  5. It amazes me how resourceful "us" parents become.I couldn't agree with you more I have gazed through all the glossy mags with the fab OT equipment in them and then shuddered at the prices...before my little man was diagnosed a sweeping brush was a sweeping brush and nothing else.Now this sweeping brush has a dual purpose..an enjoyable OT tool.

    Another fab post and love the photos ! Well done xx

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  6. Like Petunia I thought Kegel was a brand of bread so Trampolining is risky for me too. Oh and the filthy evil developer who built our estate made the gardens too small.

    But all the other indoor stuff is brilliant and I love that you have taken it upon yourself to ensure he gets his sensory diet topped up each day. No better way!

    xx

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  7. Great post again Jean, well done! Fab photos too.

    Great idea to share your DIY OT ideas. If only we all knew then what we know (and don't know!)now, huh?!!

    I love lava lamps too. Very successful when themed with sleepy music and snuggly blankets in a darkened room after a tantrum...or even to head one off. xx Jazzy

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